Too Many Allergies! Update on Manny
Okay, it’s been a while since I shared about Manny and how it’s going working with his eczema. We went to the doctor today, and I decided it was time to record some things.
First, his eczema is pretty much under control, but he still gets itchy. And he keeps breaking out around his mouth–and if we don’t put something on it for a few days (which is hard, because he hates me putting anything on his face), it gets dry and cracked and peels and bleeds and, well, yeah, not good.
We have tried various and sundry supplements. We have taken him off of beans for the most part, added chicken once a week, and try to get down hemp protein and chia seeds whenever possible. And quinoa and amaranth are complete proteins (meaning they contain all the essential amino acids), and he likes them more or less.
At the last visit, I asked if we could do a test of several foods that were not on the normal IgE test. So we made a list of about a dozen foods–things like spinach, cucumber, apples, carrots, etc. I was floored by the results. Every single one of them was either moderate, high, or very high. As the doctor put it, at the moderate level, doctors prescribe epi pens just to be safe. At the higher levels, there is risk for anaphylactic shock. Granted, my son has never had that. The worst reaction he has ever had could best be described as a mild case of asthma, with wheezing and excess mucus. It usually only lasts 10-15 minutes. Also, the quantity of food determines the severity of his reaction. He doesn’t appear to react at all to minuscule amounts of allergens–for instance, I make nut milk in the same blender that I make his rice milk, and there is no way I can thoroughly clean the blade. So I couldn’t give his rice milk to someone who got anaphylaxis from, say, almonds, because they would probably end up in the hospital. On the other hand, if I gave him a teaspoon of almond milk, he would probably have some kind of immediate reaction–exactly what would be hard to say, since he’s never had any.
One reason we have been going to a naturopath is that we like taking a natural approach first and foremost. But we are running out of options. Today he started talking about what antihistamines we had tried, and had we ever tried oral steroids.
Now, many people trying the natural approach would shy away from steroids of any kind, especially oral ones. But I didn’t bat an eye. You see, I had an experience once when my left eyelid became inflamed, and there was no apparent cause. The doctor was puzzled; she had never seen anything like it. She tried a mild steroid for about 5 days, and it improved, but as soon as I ran out, it came back. She tried Prednisone for about 7 or 8 days, but it had the same reaction. I ran out near the weekend, and by Saturday I was very uncomfortable. My eyelid was almost swollen shut, and it was very irritated (thankfully they eye itself was never affected). As a Seventh-day Adventist, I attend church on Saturday, and do not believe in conducting business on that day. However, when one of the elder’s wives told me that I really shouldn’t wait for Monday, but should go to a doctor that very afternoon, I went. She told me of a Mexican doctor right on my way home, and even though I got there about 15 minutes after closing time, she was still there and took pity on me. She showed me a picture in one of her books of the very condition I had, gave me a longer dose of Prednisone and I think some cream, and it went away and never came back.
I do not believe that the Prednisone cured me. I believe it simply calmed the inflammation long enough for my body to deal with whatever was causing the problem and to heal itself. That is what the naturopath was thinking when he recommended the oral steroids. He said we would taper it, just like I did for my eyelid, and that the idea would be to simply give his digestive system a chance to calm down and heal a little. Because his allergies are just out of control. Honestly, the only things he has ever tested not allergic to are meat and chocolate. We haven’t tested any gluten-free grains, but all of them (except buckwheat, which is as bad as milk) seem to be okay. At least, we are trying to keep a little variety!
So I decided to try Zyrtec. We had already tried Benadryl (he reacted to it) and Claratin (no reaction, but no improvement, either), so that was our next OTC choice. I think there is one more option if we ever need it; after that, we would have to look at prescription antihistamines. We already tried one, but either it tasted so bad that it gagged him, or he reacted to it and threw it up. He was too young to ask, but whatever it was, I’m not trying it again! (I’m sure the doctor has a record of what prescriptions he gave back then, so I could ask for a different one if needed.)
We are also going to look into L-glutamine. I can’t remember if we ever tried it or not, and I can’t remember where I heard about it, but I know I’ve heard of it before. We’re going to see if it has any effect on him at all. I think the steroids would be the last resort.
At the suggestion of a couple of people, I decided to test pumpkin seeds on Manny. He had never had them before. I started with a simple skin test. I crushed one seed between two spoons and rubbed some of the crumbs between my fingers until they felt oily. Then I rubbed this into the back of his knee, in the soft skin where he has recently broken out (at the moment, it’s pretty clear). When no reaction showed after several minutes, I let him try a tiny bit of the crushed seed. [Please note: If your child has a history of anaphylaxis, you may want to try such a test under a doctor's supervision; my son has never had any form of anaphylaxis, and the severity of his reactions are directly proportional to the amount of allergen consumed. He does not appear highly sensitive to small amounts of contamination, or I would probably ask his doctor to do an allergy test before testing any food orally. I would strongly recommend that you talk to your doctor about doing such home tests on your child.]
When he still had no reaction–including no funny sensations in his mouth, such as he had with coconut and cashew–I gave him the rest of the crushed seed, followed by one whole seed. He really liked them, and didn’t seem to react at all. No congestion, no “allergy asthma” (this is the best description I have heard for one of the reactions he gets), no itchiness, nothing. So I posted on Facebook that I was “cautiously optimistic” about the seeds.
That night, however, he was restless. After being put to bed, he fell asleep quickly, but then would keep waking and calling for Mama or just groaning or fussing and rubbing his eyes and scratching his neck (which is somewhat irritated still). I had observed this behavior before, usually after consuming such small quantities of allergens that he had no reaction at the time of consumption. One example would be the night after he ate the gluten-free pasta at the Olive Garden. I found out later that it is made with corn, tomatoes, cheese, and a number of other known allergens. I wish they would just serve rice pasta! But I digress.
I had gone to the pharmacy earlier in the evening and purchased the generic Zyrtec antihistamine, and when my husband started complaining about how he wasn’t going to get any sleep that night (and I began to wonder if I would either), it occurred to me to give him a dose. So I did. He only whined once after that, and then slept peacefully the rest of the night. So apparently Zyrtec is the drug of choice for Manny. I like that it only has to be given once a day, unlike Benadryl. So if it causes drowsiness, I will just give the dose in the evening and put him to bed. He’s over any drowsiness he might have by morning, so it works out well.
So that’s where we are at. Still struggling with his diet–especially now that he is in the very picky/doesn’t like anything stage (normal for his age, but very trying, since his choices are already so limited). Top that off with him being hungry all the time (I think he might be growing), and, well, you can probably relate if you are reading this, because either your child has eczema too, or someone close to you does. So wish me luck, and if you have any ideas, please share them!
Tags: allergy, anaphylactic, anaphylaxis, antihistamines, asthma, beans, break, calm, chia, chicken, contamination, control, diet, digestive, doctor, eczema, foods, fussing, gut, heal, hemp, ichiness, IgE, L-glutamine, natural, naturopath, oral, out, prednisone, protein, pumpkin seeds, quantity, react, reaction, seeds, severity, shock, skin, steroids, supplements, system, test, under
Hello,
My youngest daughter is 20 years old and has eczema her entire life. It started when she was 3 weeks old and I went to the doctor for what he called “cradle cap” on the back of her head. I asked if this could be allergy related and was told “babies don’t have allergies”. Boy was he wrong! My daughter is allergic to many foods – epipen for shellfish & peanuts as well as dust, trees – many types, grasses – again many types, pollen, dust mites, mold, mildew, cats, dogs, feathers, – all proven via skin tests.
When she was a baby, they gave her atarax, which I found out was a tranquilizer so I moved to Homeopathy. I too did not like giving steroids and non natural products, but over the years I’ve accepted the fact that there is a reason for modern medicine.
One thing that I wanted to share with you was that I discovered that she was also allergic to processed corn products. She can eat corn on the cob, but nothing with corn starch, corn syrup or corn syrup solids at all. Soy formula is 45% processed corn products – at least it was when she was an infant. I nursed her, but my husband and I split up when she was 10 months and he would use soy formula – my other kids had been lactose intolerant so we thought this best with her skin issues.
Another is that we used aquaphor & actually crisco as her daily moisturizer. You MUST moisterize BEFORE you dry your son off while he’s still wet with something like aquaphor or crisco (the solid not the oil) to keep the moisture next to the skin.
Finally allergies react three fold, eczema is the skins way, asthma is the lungs and what one calls hayfever is the nose & eyes way of dealing with the allergens. You can react one way or as my daughter does have all three, Eczema started as a baby, asthma started around 4 and Hayfever started around adolescence. At age 10 I told the doctors to stop telling her she would grow out of it because it was obvious she wasn’t and she was dealing with some negative behavior of students and even teachers at school during flare ups. It was not helping her to think that it would go away some day. Since your son’s seems to be similar as far as acuteness is concerned, I would urge you to protect him from this earlier than I did. It may be something he will live with for the rest of his life.
We did do allergy shots around 4th grade until 8th grade until she reacted anaphylactically to them 2 times in a row. We found out the following year that the classroom she was in at school had the carpet pulled up and was full of mold and mildew because of a teacher reacting in it. She was in this classroom for English, homeroom and religion class during her school day so she was probably being put over her threshold when she had the shots. On other time she reacted at a restaurant with the asthma symptoms you spoke of on Mother’s day because they were serving primarily crabs and other shellfish (we live in maryland) and it was just in the air – she hadn’t eaten anything. We left and she used her inhaler. I would caution you to be careful as anaphylaxis breathing symptoms can began with wheezing like asthma because the kids don’t recognize the itchiness in their throat as a problem so I would ask your doctor for an EpiPen if you haven’t been given one already.
Don’t get discouraged, my daughter is a beautiful young woman and your son will be a wonderful young man someday
Feel free to contact me if you have any questions.
I first noticed my son’s allergies in the form of gas while still in the hospital. Through breastmilk, he was getting whole wheat and other grains we now know he’s very allergic to. We, too, ask people to stop saying he will grow out of it because they won’t. My oldest son had baby eczema and developed asthma by 2. By age 8 it was easily manageable and a lot of people liked to say he grew out of it. Really? At 18 he can still get wheezy from a dirty outside cat ( cat, mold, and dust mite allergies) but we know what to avoid and how to keep him healthy. He will also have an eczema patch if he doesn’t use enough lotion of cuts near dead grass without quickly showering after. As for my 5 yr old who was born gassy from food allergies, he has continued to become worse as many mistakes in his diagnosis has lead him to repeated and new exposures. ( We do have periods of relief, but you have to accept these children are simply sensitive from a tired immune system with as much coming into the body through the broken skin.) I believe his skin is just becoming weaker. I am a natural mom, but I realized that sometimes medical intervention IS needed and CAN prevent problems, but please go with your gut. My son’s allergies continue to get worse from repeated exposures to things they’ve yet to diagnose. His own allergist, that I fired this morning, has seen him for two years and only treats symptoms or does tests I ask. We are often treated like we are overreacting and should just deal with it. Please don’t. Please continue to be your child’s advocate and insist upon more testing and get second and third opinions. Eczema from food allergies is absolutely not the same as dry skin eczema that my first child has. While his mold allergy can still trigger eczema, he’s been able to be treated in your typical eczema formula. But, the little one has food allergies and if you ask me, rashes just keep happening because we don’t know what else bothers him. The stronger his skin is, the less he reacts to things he comes in contact with, for obvious reasons. I feel that finding out what is causing the rash is key. Keep fighting the good fight and know there are other mothers suffering with their children. We’ll get through this! Where there’s a will, there’s a way. Just keep looking at the map to find your direction! May peace and healing come to all who suffer, in any form.